WE'RE SEARCHING ANSWERS, AND A CURE

congratulations, you won the SLC35A2-congenital disorder of glycosylation lottery, if you are looking for help, we're here

BEAUTY ISN’T ALWAYS PERFECT

“What is perhaps new to some is the idea that these children also represent exceptional examples of humanity. They have talents and gifts in equal, if not greater, measure than those of us who do not have to confront physical or cognitive disability personally. … These children are often agents of transformational change for their families and friends. It is as though their genetic conditions strip some artifice from those of us charged with caring for them and many of those they meet. Somehow these children can pierce the bubble we insulate ourselves in, so that … patience, tolerance, joy and acceptance take a stronger hold in the hearts of those they touch.”

From the Forward of the Super Power Baby Project by Rachel Callander

WHAT WE DO

SLC35A2 is a 
 very rare disease!

Rare diseases can be frustrating, resources often scarce, but the community is strong

CDG Info Leaflet

A few resources

CDGCare

GET STARTED

SLC35A2

GET STARTED

Rare Gene

GET STARTED

Harvard

GET STARTED

BMC Medical

GET STARTED

CONNECT WITH US

Contact us

The Special Needs Community is welcoming and supportive, feel free the contact us

Contact form will be displayed here. To activate it you have to set the "contact form shortcode" parameter in Customizer.