BEAUTY ISN’T ALWAYS PERFECT
“What is perhaps new to some is the idea that these children also represent exceptional examples of humanity. They have talents and gifts in equal, if not greater, measure than those of us who do not have to confront physical or cognitive disability personally. … These children are often agents of transformational change for their families and friends. It is as though their genetic conditions strip some artifice from those of us charged with caring for them and many of those they meet. Somehow these children can pierce the bubble we insulate ourselves in, so that … patience, tolerance, joy and acceptance take a stronger hold in the hearts of those they touch.”
From the Forward of the Super Power Baby Project by Rachel Callander
WHAT WE DO
SLC35A2 is a
very rare disease!
Rare diseases can be frustrating, resources often scarce, but the community is strong
CDG Info Leaflet
A few resources
CDGCare
GET STARTEDCHOP
GET STARTEDSLC35A2
GET STARTEDRare Gene
GET STARTEDHarvard
GET STARTEDBMC Medical
GET STARTEDCONNECT WITH US
Contact us
The Special Needs Community is welcoming and supportive, feel free the contact us
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